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  1. #1
    ram3500-RCU's Avatar
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    The tiniest aviation enthusiast and his story

    I would like tell you all about a little guy that is in love with aviation and is enamored with grandpas airplanes. His name is Jackson. He will be 3 in January. Yes, he is not yet three and he is abscessed with anything having to do with aviation, including our beloved hobby. Here is a picture of him so you have a face to go with his story.
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    His story. At 6 months old, he broke his leg. two weeks later, he broke his other leg. My son and daughter in law were investigated for child abuse by social services, which had an office in Akron Children's Hospital, where they were taking him for care. This passed, and it became apparent that Jackson had a serious medical problem. Here he is about that time, in his apparatus.
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    After numerous trips to several facilities, while at the Shriner's research hospital in Montreal, it was confirmed that Jackson has a very rare form of "brittle bone" disease. Only about 20 or so kids in the world were know to have it, at the time of his diagnosis, a little over two years ago. My daughter in law quit her job as a physical therapist to attend to Jackson, as he is so fragile that he can not be left with baby sitters, or be unattended around pets, other kids, or himself.

    Fast forward, and he has now broken bones more than 60 times!!!!! Can you imagine what he goes through when the weather changes. He has dealt with pain most of his short life so far. It was determined that he get semi-yearly injections of something I can not pronounce, to increase his bone density. This is done at Akron Children's now, and takes several hours of him lying there with an IV in his arm. He takes it like a trooper. The Doctors determined that if something was not done with his legs, he would never walk. So the kids took him out to a facility in Omaha to have stainless steel rods inserted in his upper leg bones. Two trips, one for each leg. The telescope so they can grow as he does. Pretty amazing. Here he is on the plane on one of these trips.
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    They were allowed to pre-board, so they were the first on the plane. He heard the flight attendants welcoming folks as the came on, so when they got to him, he called out "welcome aboard". It was priceless I guess. When the plane lifted off, he called out "I flyin, I flyin". Most of the front of the plane could hear him and got a kick out of it. Here he is in recovery.
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    The doctors and nurses let him go through surgery clutching his Buzz Light Year figure, his favorite toy at the time, because buzz flies. Since, he has made good progress with his legs, but continues to break arms, and recently, a lower leg. That does not stop Jackson. Here he is with dad, flying on of the remote helicopters I got for him. He calls them ogcoptors.
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    Here he is 'working' on some of grandpas airplanes. He always wants tools and loves to tinker. This little guy will fit in to RC quite well.
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    Cheers,
    Gary P. / use Steel Powder for ballast not lead. PM me for more information.

  2. #2
    ram3500-RCU's Avatar
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    Jackson will be off to Montreal in January for more operations to insert rods in his arms.

    I got him the latest flight sim so he can fly himself. He wants his hands on the remotes as we fly his indoor helis for him, and is a little shaky on his own. He is remarkable for a 2 year old though. Got him a tandem co-axle heli last week. My son took it out of the box for him. The adults were talking in the living room and Jackson was at the other end. The next thing they knew, the Chinook was flying past them. He had gotten both switches on, got the thing bound and airborne in a couple minutes!!!!! Can't wait to take him to the field and teach him RC. It will be something he can enjoy even in his fragile condition, and he already loves airplanes so.

    Here he is with one of his early airplanes.

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    With mommy.
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    Recent shots.
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    With his big sister, who is completely healthy.
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    I just bought him a little quad copter that is mounted in a cage. Supposedly it can be safely bounced off walls and the ceiling with no damage. I hope to Jackson able to manuver it himself. I know he will enjoy that.
    Cheers,
    Gary P. / use Steel Powder for ballast not lead. PM me for more information.

  3. #3
    ram3500-RCU's Avatar
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    Oh, did I mention that Cozy cancelled their families insurance policy? Like is happening to so many these days.
    Cheers,
    Gary P. / use Steel Powder for ballast not lead. PM me for more information.

  4. #4
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    A very heart warming story and great photographs. I showed this to my family and the girls just want to cuddle him.

    We are sending lots of happy Aussie smiles to Jackson and his family. I'll be in Montreal in Feb myself, Wishing him all the best with the operation. Thank you for sharing.
    Last edited by Rob2160; 12-08-2013 at 11:05 PM.
    My biggest fear is when I die my wife will sell my planes for what I told her they cost.

  5. #5
    ram3500-RCU's Avatar
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    Quote Originally Posted by Rob2160 View Post
    A very heart warming story and great photographs. I showed this to my family and the girls just want to cuddle him.

    We are sending lots of happy Aussie smiles to Jackson and his family. I'll be in Montreal in Feb myself, Wishing him all the best with the operation. Thank you for sharing.
    Thank you so much. We will keep you all posted as Jackson progresses. He has not walked yet, other than in his tiny parallel bars his therapist gave them. He scooches all over though. I have a lot of amusing stories about him I'd like to share from time to time. He keeps us all in stitches much of the time. His vocabulary is very advanced because he has always been in close company with adults, being held for most of the last two years. He is also potty trained and has been for several months. His older cousins are still working on that. His new favorite movie is Superman, of course, because he flies. :-)

    Another picture of him in the hospital after his first surgery.

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    back at the motel before he was cleared to go home.

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    Cheers,
    Gary P. / use Steel Powder for ballast not lead. PM me for more information.

  6. #6
    DavidAgar's Avatar
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    What a story and such a brave young man. If you would not mind supplying me with an address, via PM, I would love to send him something airplane related to help in his recovery and healing process. If not I understand and will keep him in my thoughts and prayers... Dave
    If the screw ain\'t loose then things ain\'t normal.

    Dave Agar
    AMA#97144

  7. #7
    The lil guy is in my prayers , and bless you for giving him the aviation hobby to maybe help distract a bit from his condition . I truly hope for the best for him

  8. #8
    ram3500-RCU's Avatar
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    Thanks Guys.

    I'll send you that address David, and thank you so much for your kindness.

    I saw one of these little quad copters mounted in a cage. It is protected from impacts with walls and furniture and thought maybe Jackson could operate it by himself. He always wants the controls :-). Took it over this week. It actually is pretty cool and he can in fact control it, sort of. It has a switch on the front of the transmitter that changes the modes from ground to air operation. I'll get some pictures of him with it and post them..
    Cheers,
    Gary P. / use Steel Powder for ballast not lead. PM me for more information.

  9. #9
    ram3500-RCU's Avatar
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    Here he is in the Bobcat this summer. He wanted to sit in it by himself, but he wanted his airplane left on the fender till he got back out. You can see it on the left side of the picture. We had just been flying it in the street. :-)

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    Cheers,
    Gary P. / use Steel Powder for ballast not lead. PM me for more information.


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